NISO Plus 2021 has ended
NISO Plus 2021 is going to be a global virtual event, happening literally around the world February 22-25, 2021. Building on the wonderful response to NISO Plus 2020, we’re bringing the same quality of content and conversation to this born-digital event, with dozens of amazing speakers and keynotes from across the globe. Scheduled to maximize attendance from as many timezones as possible, there will be things for you to see and do around the clock if you wish...or, pick and choose to make the experience perfect for your interests.

avatar for Christine Suver

Christine Suver

Sage Bionetworks
Director Research Governance and Ethics

Contact Me

I lead the Research Governance and Ethics group at Sage Bionetworks. The group develops and pilots data sharing models and tools to enable open research collaborations.
In my work, I help research participants and researchers determine the appropriate governance approach to contribute, collect, access, and share research data responsibly.
It starts with research participants. I design eConsent experiences to better inform participants about the risks and benefits of participating in research. I explain the real-world implication of big data analysis, comprehensive data linkage, and the impact on their privacy. I am particularly interested in developing new eConsent to support the autonomous decision of populations with a wide range of memory and cognitive ability.
I also help researchers determine the governance conditions that enable them to work collaboratively and comply with ethical and regulatory requirements. I co-chair the Governance Working Group of the (exceptional) National COVID Cohort Collaborative initiative (N3C), to enable dozens of institutions to responsibly share clinical data for urgent COVID-related research.
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